I started to put my day yesterday into a Facebook post and quickly realized it was going to get long.
The past 2 months, i have been seeing a neurologist with the goal of finding a medication combo to help with the pain in my fave from Trigeminal Neuralgia.
I did not care for this doctor at all but the other option was a wait until July.
When I headed up two weeks ago for a followup, my car broke down and I missed the appointment. I called and reported how the medication changes had been for me and asked agar they wanted me to do. Rather than rescheduling me, they told me to call my neurosurgeon.
I called the neurosurgeon explained my issue with this doctor and they were able to get me scheduled in with our first choice for yesterday instead of July. (As a side note, when a specialist reviews your case and moves you up a month on their schedule it is a little scary, it generally means they believe you have a major issue in all of the experiences we have had with specialists)
So I saw the new neurologist yesterday, and loved him. Which naturally means when I checked out, they told me he is leaving in two weeks. (He is graduating SIU medical school)
I really liked the attending? Physician too, though so we are good ;-)
They sat down and spent time with me going over the details. They asked questions, took notes and showed empathy to what I have been dealing with.
Ultimately n they don't think they can help me much. We decided to wean off a couple of the meds that aren't working well. And the ordered another brain mri to double check we aren't facing a known cause of this disease (like a tumor).
When the MRI comes back clear like the first one, they will send me back to neurosurgery and we will move forward with exploring brain surgery options.
Now I am just in a waiting game. The clinic will call me about the MRI schedule, and I will go to Springfield for that.
I'm excited that we a are moving forward. I am hopeful that it will help and my quality of life will be back to what it was before the pain set in on Jan 31.
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