Friday, June 26, 2015

My house and heart are full.

I  had a brain mri on Monday.  No  results back yet.

In an attempt to distract myself more than my career already does, I have put more into focusing on the positives. 

We've been blessed with the kids we have in this home.  I'm already in bed, but they aren't :)

I've spent the last couple of nights exhausted and in bed early.  But I still get to listen to them as they hang out together. 

They've been playing card games,  watching movies,  and planning ball games at the park with their friends (it's  way cool having 3 near the same age who play with a lot of the same kids)

God blessed me greatly with the 6 kids in our home.  I absolutely adore all of them.  ♡

These 6 kids are a constant reminder to me to be better,  to do better.  Without a doubt, God has put them where He has to be a driving force in my own walk of faith. 


" May the God of endurance and encouragement grant you to live in such harmony with one another, in accord with Christ Jesus,"

Thursday, June 4, 2015

The next step

I started to put my day yesterday into a Facebook post and quickly realized it was going to get long. 

The past 2 months,  i have been seeing a neurologist with the goal of finding a medication combo to help with the pain in my fave from Trigeminal Neuralgia.

I did not care for this doctor at all but the other option was a wait until July. 

When I  headed up two weeks ago for a followup,  my car broke down and I missed the appointment.  I called and reported how the medication changes had been for me and asked agar they wanted me to do.  Rather than rescheduling me,  they told me to call my neurosurgeon. 

I called the neurosurgeon explained my issue with this doctor and they were able to get me scheduled in with our first choice for yesterday instead of July.  (As a side note,  when a specialist reviews your case and moves you up a month on their schedule it is a little scary,  it generally means they believe you have a major issue in all of the experiences we have had with specialists)

So I saw the new neurologist yesterday,  and loved him.  Which naturally means when I checked out, they told me he is leaving in two weeks.  (He is graduating SIU medical school)

I really liked the attending?  Physician too,  though so we are good ;-)

They sat down and spent time with me going over the details.  They asked questions,  took notes and showed empathy to what I have been dealing with. 

Ultimately n they don't think they can help me much.  We decided to wean off a couple of the meds that aren't working well.  And the ordered another brain mri to double check we aren't facing a known cause of this disease (like a tumor).

When the MRI comes back clear like the first one,  they will send me back to neurosurgery and we will move forward with exploring brain surgery options. 

Now I am just in a waiting game.  The clinic will call me about the MRI schedule,  and I will go to Springfield for that. 

I'm excited that we a are moving forward.  I am hopeful that it will help and my quality of life will be back to what it was before the pain set in on Jan 31.